It was Christmas morning 2002 that I woke up and knew something was wrong. That was 12 years ago. Its been a battle ever since. RA has taken up so much of my time, energy and thoughts.
I took a break from meds for a while. Just to give my body a rest. I also went back to see my original rheumatologist a few months ago.
I also found a new general doctor, who is paying attention. I've had chronically low vitamin D for many, many years. I take large doses of vitamin D, and there is no change, this has been going on for about 9 years. SO my original rheumatologist mentions seeing an endocrinologist. I saw my general doctor again, and I tell him my rheum would like me to go see an endocrinologist. He looks at my chart and brings up the fact that I have medullary sponge kidneys, and says that could be the reason why I have such low vitamin D. WOW, nobody has thought of that, or mentioned it. So I see this new doctor tomorrow. We shall she what he says, and I've been warned he's a bit odd. Hooray, I'm so excited, another doctor! hahaha!
I don't quite feel like I'm living a nightmare, but there is some serious bargaining and juggling of thoughts going on in my head all the time. I try not to go too far ahead in time, and think about what my life is going to be like then. There is no quick fix, no magic pill as of yet. I have hope they will find a cure, but until then life goes on. I have to be able to wake up and function, even if that means I need an electric scooter to get around.
Its amazing how before this disease, I never thought twice about my body and its simple functions like walking. We take so much for granted, and we never really think about getting sick and losing the ability to walk.
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